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01.Transitioning to adult care among adolescents with sickle cell disease: A transitioning clinic based on patient and caregiver concerns and needs (pp. 537-545)
02.Barriers and facilitators to implementing a transition pathway for adolescents with diabetes: A health professionals perspective (pp. 489-498)
03.Measuring health care transition planning outcomes: Challenges and issues (pp. 463-472)
04.Toward evidence-based health care transition: The Health Care Transition Research Consortium (pp. 479-486)
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Toward evidence-based health care transition: The Health Care Transition Research Consortium (pp. 479-486) $45.00
Authors:  Maria E. Ferris, David Wood, M. Ted Ferris, Peter Sim, Bruce Kelly, Arwa Saidi, Santi Bhagat, Kristi Bickford, and Irene Jurczyk
Abstract:
The Health Care Transition Research Consortium (HCTRC) is an interdisciplinary health research group of volunteers committed to advancing the field of health care transition from pediatric to adult-focused providers. The HCTRC membership is international and interdisciplinary and includes adolescents and emerging adults with chronic medical conditions or disabilities along with their family members. The HCTRC seeks to: 1) develop or validate reliable metrics that measure and monitor the process of health care transition and patient outcomes, 2) develop health care transition education curricula for students from health-related disciplines, 3) educate health care providers, health care administrators and local and state policymakers regarding new systems of care to promote successful health care transition, and 4) promote health policy that supports healthy transition at the local, state and federal levels. A summary of the organizationís history, membership, goals, objectives, discussions and accomplishments to date are presented. 


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Toward evidence-based health care transition: The Health Care Transition Research Consortium (pp. 479-486)