Measurement of medical self-management and transition readiness among Canadian adolescents with special health care needs (pp. 527-535)
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Authors: Tricia S Williams, Elisabeth M.S. Sherman, Catherine Dunseith, Jean K. Mah, Marlene Blackman, John Latter, Ismail Mohamed, Daniel J. Slick, and Nancy Thornton
Abstract: There are no well-established tools for assessing medical self-management skills and transition readiness among youth with special health care needs to successfully move from pediatric to adult medical based care.
Objectives: This study examines parent-youth agreement, psychometric properties and concurrent validity of the Self-Management Skills Assessment Guide, a medical self-management and transition readiness measure developed for the Alberta Children’s Hospital.
Study group: Forty nine youth (ages 11-18, mean age = 15.58) and their parents were recruited through neurology clinics and hospital transition programs at Alberta Children’s Hospital.
Methods: Participants and parents completed the Self-Management Skills Assessment Guide, as well as demographic information and a measure of independent functioning (i.e., standardized adaptive skills scale). Individual and mean scores were examined by patient group and respondent (youth, parent) using t-tests and one-way ANOVAs. Psychometric properties were analyzed using measures of internal consistency and correlations between self-management mean scores, demographic and a measure of general adaptive functioning (SIB-R).
Results: Moderate levels of medical self-management were reported and initial psychometric properties were strong. The correlation between youth and parent reports was of a medium to large size. Self-management was minimally associated with age and participation in hospital transition programming, but no other demographic variables (i.e., gender, parent education). Medical self-management and general adaptive functioning were strongly related. Conclusions: Our results provide preliminary support for a measure of medical self-management and transition readiness in health care settings. Future work with larger more inclusive samples is recommended.
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