Cancer Deaths in People with Moderate to Profound Intellectual Disabilities: The Leicestershire Experience 1993-2006 (pp. 215-222)
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Authors: Reza Kiani, Freya Tyrer, Abdul Shaikh, Catherine W. McGrother and Daniel Satgé
Abstract: Life expectancy in people with intellectual disability has increased with advanced medical and social care. With this increase, it is likely that people with intellectual disability will experience similar morbidity and mortality as the general population, including cancer. The aim of this study was to compare mortality from cancer in people with intellectual disability with that found in the general population. Cancer-specific Standardised Mortality Ratios and exact 95% confidence intervals were calculated by age and sex for adults with moderate to profound intellectual disability living in the unitary authorities of Leicester, Leicestershire and Rutland, United Kingdom, between 1993 and 2006. A total of 503 (17% of population) adults with intellectual disability died during the 14-year study period (30,144 person-years), of which 47 people (9%) had died from cancer. Overall there was no significant difference in cancer-specific mortality in people with moderate to profound intellectual disability compared with the general population (Standardised Mortality Ratio=94). This study suggests that people with moderate to profound intellectual disability are as likely to have cancer as the general population and highlights the need to adapt cancer services to meet the specific and unique needs of this client group.