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Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects $330.00
Editors: Daniel Satgé (Centre Hospitalier Universitaire, St. Etienne, France), Joav Merrick (Ministry of Social Affairs, Jerusalem, Israel)
Book Description:
In recent years it has become clear that cancer is a major health concern for people with an intellectual disability. In the general population it is estimated that one in four people will develop cancer and that more than half of those diagnosed will die from the disease. Recent research has revealed that cancer is not less frequent in people with an intellectual disability and some tumours are more common. This population has different risk factors for developing cancer and different needs for both medical and psychosocial care provision. Consequently, medical surveillance, diagnosis procedures and treatments often have to be modified to suit this population. This book presents and discusses research on topics such as adapted care for people with intellectual disability and cancer, general aspects of cancer surveillance, cancer in persons with Down syndrome and also cancer in persons with other syndromes. (Imprint: Nova Biomedical)

Table of Contents:
(Mohammed Morad)

Introduction: Cancer and intellectual disability
(Daniel Satgé, Sheena Sullivan and Joav Merrick)

Section One: Adapted Care

Chapter 1. Communication, access and comfort;pp. 3-12
(Tony Gilbert, Tina Wilkinson and Sioux Crudgington University of Plymouth, Derriford Hospital, Derriford, Plymouth, United Kingdom)

Chapter 2. User participation is important for the creation of adapted cancer information material;pp. 13-19
(Stine Skorpen, Frode K Larsen and Torhild Holthe, Norwegian Centre for Research, Tonsberg, Norway and others)

Chapter 3. Disclosure and information for people with intellectual disabilities who have cancer;pp. 21-29
(Jane Bernal and Irene Tuffrey-Wijne, Cornwall Partnership NHS Trust, Medical Dept., WRC, Trengweath, Redruth and others)

Chapter 4. Assessing pain in children with intellectual disability;pp. 31-44
(Lynn M Breau, School of Nursing, Dept. of Pediatrics, Dalhousie University, Halifax, Nova Scotia, Canada)

Chapter 5. Assessmnet of Pain in Adults with Cognitive Impairment;pp. 45-58
(Patricia Schofield, Amanda Clarke, Mark Faulkner, Margaret Dunham, Amanda Howarth, University of Aberdeen, Centre of Advanced Studies in Nursing, Aberdeen)

Chapter 6. Anesthesia in Children with Intellectual Disability;pp. 59-70
(Fatis Altintas and Ozlem S Cakmakkaya, Cerrahpasa Medical School, University of Istanbul, Turkey)

Chapter 7. Perceptions of death among adults with intellectual disability;pp. 71-80
(Anne Dusart, CreaI Bourgogne(Centre d'Etudes et d'Action sur les Handicaps et les Inadaptations), Dijon, France)

Chapter 8. Thinking about death and dying;pp. 81-90
(Stuart Todd and Sue Read, University of Clamorgan, Wales and School of Nursing and Midwifery, Keele University, Staffordshire, United Kingdom)

Chapter 9. Palliative care to people with intellectual disabilities and cancer;pp. 91-99
(Irene Tuffrey-Wijne, Leopold Curfs and Sheila Hollins, St. George's, University of London, United Kingdom)

Section Two: Cancer in Persons With Intellectual Disability

Chapter 10. Breast cancer surveillance;pp. 103-112
(Diane S. Willis, Daniel Satgé and Sheena G Sullivan, School of Nursing, Napier University, Edinburgh, Uniuted Kingdom)

Chapter 11. Cervical cancer surveillance;pp. 113-122
(Sheena G Sullivan, Daniel Satgé and Diane S Willis)

Chapter 12. Testicular cancer;pp. 123-132
(Annie J Sasco, Roland Ah-Song, Motoi Nishi, Stephane Culine, Marie-Odile Rethore, Daniel Satge, Team of Epidemiology for Cancer Prevention, Bordeau, France and others)

Chapter 13. Cancer deaths in people with moderate to profound intellectual disabilities;pp. 133-140
(Reza Kiani, Freya Tyrer, Abdul Shaikh, Catherine W. McGrother, Daniel Satge, Leicester Frith Hospital, England and others)

Chapter 14. Cancer mortality in Israel 1991-2005;pp. 141-147
(Daniel Satgé, Efrat Merrick-Kenig, Isack Kandel, Mohammed Morad, Joav Merrick, University Hospital, Saint-Etienne, France and others)

Section Three: Down Syndrome

Chapter 15. Down syndrome and leukemia;pp. 151-165
(Ana C Xavier, Yubin Ge and Jeffrey W. Taub, Children's Hospital of Michigan, Detroit, USA)

Chapter 16. Ovarian dysgerminoma;pp. 167-172
(Pauline Girard, Christian Piolat, Chantal Durand, Dominique Pasquier, Philippe Garnier, Dominique Plantaz, Kelly Dilworth, Dept. of Pediatrics, Centre Hospitalier Universitaire, Grenoble, France)

Chapter 17. Ocular tumors in Down syndrome;pp. 173-183
(Daniel Satgé, Didier Lacombe, Michel JJ Vekemans, Anne Bonnet, Marie-Odile Rethore, Francis Munier, Centre Hospitalier Universitaire, Saint Etienne France)

Chapter 18. Oral cancers and Down syndrome;pp. 185-192
(Martine Hennequin, Denise Faulks, Bénédicte de Fréminville, Manuella Delage-Corre, UFR d'Odontologie, Universite Clermont, Clermont-Ferrand and others)

Chapter 19. Cancer mortality in Down syndrome;pp. 193-206
(Annie J Sasco, Steven M Day, Nicolas Voirin, David J Strauss, Robert M Shavelle, Daniel Satge, Epidemiology for Cancer Preventi;pp. 207-215
(Lital Keinan Boker and Joav Merrick, School of Public Health, Faculty of Social Welfare and Health Sciences, University of Haifa, Israel and others)

Chapter 20. Cancer in Persons with Down Syndrome in Israel;pp. 207-215
(Lital Keinan Boker, Joav Merrick, School of Public Health, University of Haifa, Israel and others)

Section Four: Cancer in other Syndromes

Chapter 21. Cancer mortality in cerebral palsy;pp. 219-229
(Steven M Day, Jordan Brooks, David Strauss, Sharon Shumway, Robert M. Shavelle, Scott Kush, Annie J. Sasco, The Life Expectancy Project, San Francisco, California, USA)

Chapter 22. Cancer incidence among persons Prader Willi syndrome, An Update;pp. 231-236
(Kristiina Patja, Reijo Sund, Markus Kaski and Eero Pukkala, Institute for Health and Welfare, Helsinki, Finland and others)

Chapter 23. Neurofibromatosis and tumours;pp. 237-248
(Hilde Brems and Eric Legius, Catholic University Leuven, Belgium)

Chapter 24. Fragile X syndrome and cancer;pp. 249-255
(Daniel Satgé, Cécile Vérité, Binh Nguyen Bui, Yves Perel, Laurence Taine, Michel Vekemans, Didier Lacombe, Service d' Anatomie et cytologie Pathologique, Centre Hospitalier Universitaire, Saint Etienne, France and others)

Chapter 25. Inherited metabolic disorders, intellectual disability and neoplasms;pp. 257-265
(Daniel Satgé and Pascale De Lonlay, Service d'Anatomie et cytologie Pathologique, Centre Hospitalier Universitaire, Saint Etienne France)

Chapter 26. Williams-Beuren syndrome and myelodysplastic;pp. 267-274
(Aurélia Nguyen, Stéphanie Drillon, Nadine Cojean,Stephane Ducassou, Natacha Entz Werle, Patrick Lutz, Pediatric Oncology unit, Pediatrie III, CHU Hautepierre, Strasbourg, France)

Chapter 27. Rett syndrome and osteosarcoma;pp. 275-279
(Etienne Darrieux, Marie-Noëlle Loiseau, Reza Kiani, Victoria Dawson, Frederic Millot,Unite d'Oncologie et Hematologie Pediatrique, CHRU La Miletrie, Poitiers, France and others)

Chapter 28. Spindle cell rhabdomyosarcoma and intellectual disability in a child with constitutional subtelomeric 13q deletion and 15q trisomy;pp. 281-288
(Cécile Vérité, Daniel Satgé, Anne Rullier, Laurence Taine, Robert Saura, Caroline Rooryck, Benoit Arveiler, Yves Perel, Didier Lacombe, Service d'Oncologie Pediatrique, CHU Bordeaux, France and others)

Section Five: Conclusion

Chapter 29. Cancer and intellectual disability: What have we learned so far?;pp. 291-292
(Bernard Azéma, Daniel Satgé and Joav Merrick, CREAI Languedoc Roussillon, Montpellier, France and others)

Section Six: Acknowledgements

About the editors;pp. 293

About the National Institute of Child Health and Human Development in Israel;pp. 295-297

About the disability studies book series;pp. 299


      Disability Studies (Joav Merrick - Series Editor - Medical Director, Ministry of Social Affairs, Jerusalem, Israel)
   Binding: ebook
   Pub. Date: 2011
   Pages: 7 x 10 (NBC - C)
   ISBN: 978-1-61122-187-9
   Status: AV
Status Code Description
AN Announcing
FM Formatting
PP Page Proofs
FP Final Production
EP Editorial Production
PR At Prepress
AP At Press
AV Available
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Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects